- 6:00am...2 wafers Clonazepam..these wafters dissolve in Emmie's mouth
- 6:30am...1 capsule Zonisamide...the capsule is opened & poured into a juice bottle
- 9:30am...1/2 Clonazepam wafer
- 2:00pm...1/2 Clonazepam wafer
- 5:00pm...2 capsules Zonisamide
Thursday, July 22, 2010
Wednesday, July 14, 2010
After all that has gone on in my life thus far, I feel like I have earned much more than my Bachelor's & Master's degrees combined! My real education started after I had children. I want to share some information on Epilepsy with all of you. I feel it is important to know what Epilepsy is & what Emily might be experiencing when she has a seizure. With both of my children, I have committed myself to educating myself on their needs as well as the people around them. I've learned so much about reading an EEG, Infantile Spasms, MRIs, medication, synapses, the list goes on & on. I really don't need to learn anymore vocabulary words, please. UGH!
Epilepsy is a general term used for a group of disorders that cause disturbances in electrical signaling in the brain. Like an office building or a computer, the brain is a highly complex electrical system, powered by roughly 80 pulses of energy per second. These pulses move back and forth between nerve cells to produce thoughts, feelings, and memories.
An epileptic seizure occurs when these energy pulses come much more rapidly-as many as 500 per second for a short time-due to an electrical abnormality in the brain. This brief electrical surge can happen in just a small area of the brain, or it can affect the whole brain. Depending on the part of the brain that is affected, the surge of electrical energy can cause: changes in a person's sensations or state of consciousness or uncontrolled movements of certain parts of the body or of the whole body.
Epilepsy is also known as a seizure disorder because the tendency is to have recurrent seizures.Epileptic seizures vary in severity and frequency, and even in the time of day they occur.While some people may experience no more than two or three seizures during their entire lifetime, others will have several seizures in one day.
EMMIE'S SEIZURES: Emily has approximately 10 seizures/day...visible ones anyway. I am starting to see a pattern of several seizures in the morning, very few in the afternoon/evening. Lack of sleep or interrupted sleep will cause Emmie to have more seizures. During a seizure, she jerks her head & arms abruptly...up to 5 or 6 times in a row. That is considered 1 event, or 1 seizure. The events are fairly short, lasting about 5 seconds or so. If she ever has a seizure that lasts 5 minutes, I have emergency medication to give her. It's been an adjustment for me to remember to carry her meds on me all the time. We went camping last week & I forgot them. That was stressful!
Tuesday, July 13, 2010
Sunday, July 11, 2010
Sunday, July 4, 2010
Today I took Aidan & Emmie to the parade with my sister & 2 nephews. It's become tradition for the Lautenschlager's to go to a parade for every holiday. :) We had a good time. The kids waved their flags & Aidan was mesmerized by the firetrucks & police cars. As always, I stood with pride. I am proud of my husband for his service to our country. I am also proud of my grandfathers & their service. I am proud of all of the men & women that have served & are currently serving our country. I am proud of this great country we live in. I am proud to be an American!!
Today is also our Anniversary. 6 years & still going strong!! I always say that Eric & I have lived through more in 6 years than most people have during their entire marriage. During these 6 years, I have spent more than 2 years without my husband (counting deployments & military duty time). On this day it is especially hard for me. It's hard to be alone. I talked to Eric earlier today. It was so good to hear his voice. It's been 2 weeks since I've talked to him. We are all getting anxious for him to come home for his 2 week leave at the beginning of August. As we get closer to the date, I start to feel like a girl in high school waiting to go on a date with her boyfriend. :)
July 4 is a special day for our family. Of course, it is special to us because we are a military family & we honor our country. It's also the day that we celebrate our marriage & the beginning of our little family. I miss Eric & I am feeling a little sad, but it's OK. We are still husband & wife & a family. I am so proud of us & our family.
HAVE A SAFE & HAPPY 4TH OF JULY!!
Saturday, July 3, 2010
So much has been going on. I've decided to divide it into several different entries for easier reading. Enjoy!
Emmie is now 15 months old!! She turned 1 on Easter. It was a very special day. I felt so much on that day. I was so happy & excited for my girl's special day. I felt proud to have her as my daughter, proud of what she had accomplished & how far we had come as a family. The days leading up to Emmie's birthday were difficult for me. I found myself replaying her birth in my mind, Eric missing Emmie's birth, learning about her diagnosis, the anger, disappointment, sadness...it was hard to escape it. I missed Eric like crazy & I felt sad for Emmie that her Daddy wasn't there to celebrate.
We had a party for Emmie with lots of family & friends. It was a great day! Emmie wore a pink & white party dress with butterflies on it. She looked so sweet!! My mom gave Emmie a very special gift for her birthday. Years ago, my Grandma Joan (my mom's mother) gave me a story called, "Lacey's Pink Party Dress". I think her mother or grandmother passed it down to her. It is the story of a pink party dress that comes to life with the other clothes in the closet. The party dress wants Lacey to choose it to wear to a birthday party. It's very cute & over years it has changed. Grandma Joan personalized it for me. It is so special to me. My mom lost it over the years, but recently found it. She gave it to Emmie on her birthday. Having that connection with the women in our family is a special gift. I can't wait to tell Emmie the story when she gets older.
Emmie loved her cake & playing with her little friends. It's hard to believe she is 1 year old. It's been an amazing journey filled with so many emotions. I am grateful for each & every moment with my girl...Emily Grace, Emmie, Emmie Gracie Girl (as her brother calls her), my Lovie. I am excited to share the rest of the journey with Eric, Aidan, Emmie & all of you.
Who knows where it will take us?
MORE TO COME!!